The voices that Echo, And The relief Of Sharing.

For a long time, I kept a part of my experience to myself—because I didn’t think anyone would understand it. Not even my family.

I’m totally blind. I also live with hearing loss. And sometimes, when everything is quiet—especially at night—I hear things that aren’t really there. It’s not all the time, and it’s not always scary, but it can be confusing. Like hearing a faraway voice echoing in a movie… only the movie isn’t playing. The house is silent. But I still hear it—soft voices, knocking, even someone calling my name. And it feels real in the moment.

What’s strange is, I know my hearing is damaged. I can miss real voices in the daytime, miss people calling me when the door’s closed or when I have headphones on. And yet, at night, these phantom sounds come in so clearly—more clearly than real life sometimes. It’s like my brain is trying to make sense of the quiet, and instead, it fills it with things that aren’t there.

For a long time, I kept this part of my life hidden because I didn’t want people to think I was “losing it.” But last night, I sent an email to my family explaining everything—just honestly, from the heart. I left out the parts they already knew, and focused on what they didn’t: what these sounds are like, how they affect me, and how not having control over them can feel.

And you know what? They listened. They heard me. And they believed me.

I feel lighter now. Calmer. Like I’m not carrying this alone anymore. And I’m not “crazy.” I’m someone with a disability, doing my best to understand how my brain and body respond to the world around me—and sometimes, the world inside me too.

If you’ve ever experienced something similar—sensory confusion, phantom sounds, or just not being believed when you try to explain—it’s okay. You’re not alone. You deserve to be heard and understood too.

Thank you to everyone who listens with compassion. You make a bigger difference than you know.

 

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